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Need to vent
#1
Okay guys I am just posting this so I can get it off my chest, no need to reply to this one. I took my 11 year old daughter to the doctor yesterday because she has started to have seizures, and the doc ran a EEG on her to look at the function of her waves. Well the front tempol lobe cam back not good. He did not say it was epilepsy, but my family has a real bad problem when it comes to tumors. I have lost one brother, cousin (age 8), 2 Aunts and a grandmother to tumors and to be honest I dont know what to do.

It has been getting worse for about 6 months and we took her to KC to the children mercy hospital there and the doctor was in the room a total of 5 minutes and 42 seconds, look at her eyes and said nothing was wrong. My wife and I thought it was trash and he failed to do the eeg like he was suppose to. So we asked for another doctor to check it out and he found it. Wht bothers me is that the time between the last doctor and this one was 2 months. I know that does not sound like a lot of time but I know the earlier you find something the better chances you have to fight it off or kill it before it comes worse.

I am trying to get her back in ASAP for the MRI that the new doctor wants to look at now. He is trying to see if there is anything inside that is causing it. At this point it is a double edge sword; if there isnt anything in there then she might take the chance of having epilepsy for the rest of her life. But then again if there is something can they remove it safely? The part that is effected is the Mass memory cell, and any damage to that will cause a lost of both long and short term memory.

I am not sure what is to come of it, but I will continue to use this thread to keep the updates and my ability to vent under control. I know everything happens for a reason, or atleast in my eyes it does so I cannot do anything simply sitting here and worring. Lets go fishing.......

1973 MACH ONE H CODE "RUSS"
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#2
Out thoughts and prayers are with you and your struggle to find out and help what is wrong with your daughter.

My wife and I have gone through similar circumstances many years ago with our daughter. We were at first told nothing was wrong but with our insistance we managed to convice a nurse who in turn lined us up with a another doctor. He too thought nothing was wrong at first but at the end of that first visit became convinced and sent us to a specialist.

Our daughter had a severe and inopperable brain tumor which eventually took her life. Let's pray that whatever the issue is it will be diagnosed in short order and that a proceedure will be available for her help.

Keep us posted.
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#3
My thoughts and prayers to her and all of your family....And that is a scary thing..We allways hope the doctor does the right thing..But you can never trust them totaly..My cousin best freind hit with a brain tumor...Inoperable...Gave him less than 6 months too live.....Its now 15 years later and he is still going...He lost some movement and such...But he still doing pretty good for some one who was suposta be dead 15 years ago..Docs cant explain it..And vent all you want!!..And any time you wanna chat about it...let loose.

Enjoy a bit of fishing my self...Allmost time for me to get a new license.
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#4
I am sorry to hear your daughter is experiencing seizures.
I went thru a similar situation with a very good friend's daughter. I finally got so frustrated I asked to step in for the family.
The doctor kept putting off any real testing and trying to explain to patient and family that the seizures were not real but what they called "psuedo-seizures".
I became irritated and requested a meeting with doctors and family. After much talk and frustration, doctors finally agreed to perform some serious monitoring/testing. After one full week of monitoring and testing including EEG and MRI, they agreed that the seizures were indeed occurring. They adjusted her meds and now she is rarely having them any more! <Blessing>

I hope and pray your daughter is well soon.

Ray

1971 Boss 351  
1972 Q code 4 speed convertible 
1971 Mustang Sportsroof  351-2V FMX 
1973 Mach 1 (parts car)
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#5
Hang in there rentascout. As someone who works in a hospital, only a network administrator but I see and hear lots and have made good friends with many professionals, I can give a little advise.

Never take the prognoses of one doctor. Always get as many other opinions as you can. Remember, there is a reason it is called a medical practice. All doctors are going through a learning process themselves. Scary thought I know, but that is the way it is done. They see a patient and if they don't know for sure they take a guess and learn from the results.

Doctors often need to rely on other professionals. In the case of an MRI, for example, your doctor is not qualified to take or read those results. A radiology tech will take the imagesradiologistgist will view/read those images, the doctor reads the results determined by the person who read the imagUnfortunatelyntly you hear a lot about hospitals making mistakes in giving the wrong stuff to the wrong patients and the likes? this is why. Today a simple process can pass through many hands before it gets to you. Gone are the days when your doctor did it all.

Don't be so alarmed when you don't get seen by your doctor personally or for a very short meeting. It does piss you off because you're paying extremely good money to see a doctor you might only see briefly if at all. They see so many patients theassistantsstents to do most of the gathering of information they will then use to decide what happens next. Again, I know it isn't very comforting to wait hours only to briefly see your doctor, but it has become pretty common, and your health care is still being looked at pretty throughly.

Lastly, that doctor works for you not the other way around. People are used to being told what they will do by their "professionalfessinal" they just take it as their only logical option. You have the right to tell that doctor what you want done. Don't be afraid to ask questions when you don't feel you're getting what you need or what you should be getting. Ask them why they are doing what they are dois. It ios your right to know and either tell them what you want, or don't want, done.

1965 D Code
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#6
Praying for you and your family.

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#7
As a father of a 7 year old, you have my utmost sympathy and I can't add much more than what the others have said here... I know for me prayer would offer the most comfort while going through this, for you, your family, and for the professionals trying to help. Also, just another great reason to belong to this community of friends on this forum... Thanks guys!
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#8
My prayers go up for your daughter and family. That is a heavy weight to carry & then when the docs act all stupid...well rant away, I get it & understand the frustration.

[Image: 386_07_10_13_5_58_42.jpeg]
My Mustangs:
71 M-code Mach 1, Medium Blue/White Sport, 4R70W, 3L50, Factory Ram Air.
72 Q-code Mach 1, Pewter/Black Sport, 4-spd, 3L25.
65 Convertible, Britney Blue/White/White, more modified than original.
05 Convertible, Legend Lime/Tan/Tan, future classic??
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#9
My thoughts go out to you and your family......as a parent...I don't even want to imagine a situation like that. Feel free to vent anytime!

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Ken

73 Convertible 302-4v-3spd yellow /white int

08 Bullitt 4.6-5 spd black/black int


All I ask is a chance to prove that money can't make me happy
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#10
Our good thoughts go out to you and family. As parents and grandparents we know when something is not right. So glad you questioned the 1st doctor and moved onto another before more time was lost.

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Alan L
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